Well, JT returned to preschool this week and I guess the kids received him back like the hero that he really is.  They had all made cards for him during his recent scare; it's cool to have other kids be a regular part of his life, finally. 

Justy picked up a rash from somewhere and his doctor said it looked like something viral when he took a look  Thursday afternoon so we tried to keep the boys separated until we saw how it was going to go.  You can probably imagine how successful a proposition that was.  Luckily, it hasn't worsened and we're inclined to think the rash was a reaction to the antibiotic he was on for his ear infection.

Otherwise, it's the same routine:  JT and Jodi in Cincinnati 3 days a week and 4-day weekends together.  Believe me, we'll take it.  The doctors said we'd be on this schedule for the foreseeable future, so Jodi will continue to crank out the highway m ...

Sorry for the late update.  Good news...no bacteria ever grew out of the blood cultures taken, so the doctors think the fever was related to a virus.  We were discharged from the hospital on Tuesday early evening and had to report back to the hospital at 7:30am the next morning for photophersis in the day hospital.  Everything went smoothly and then we headed to the zoo for a much needed break from the hospital.  Jacob loved it, but it was still a little too hot for him.  He overheated several times so we finally called it quits and decided we'd come back in a few weeks when it may be a tad bit cooler.

More good news...Dr. Filipovich decided to cut back Jacob's oral steroids to every other day.  We're hoping that things continue to look good with this latest change.  On the not so good side of things Jacob's white blood cell count and neutrophil count were extremely low on Thursday, which probably is a reflect ...

Last week was  a busy one...all the boys back to school and Jodi trying to keep us all put together.  Justy managed to pick up a cold at his first class.  We knew this would be part of it but didn't expect it so fast.  He's okay - just a runny nose and a little cough, but now Jacob has a little cough and we really hope that 's nothing serious.  Jodi wonders if he'll need a chest X-ray at the hospital this week and even though the driving schedule is brutal, I'm glad he'll be back in Cincinnati in another day so that they can keep a good eye on him.

We went over to camp Friday evening and spent Saturday there.  Nana was in town from Florida and we hadn't seen her in over a year so it was great to visit.  If she'd had the boys a few more days, I'm confident they'd both be reading.  The boys love being there and Jodi and I really appreciate the chance for homemade meals and some extra s ...

Please tune in for Saturday's concert (info on the Home page) and check out our new Photo gallery!!!   And, please, please, please join the bone marrow registry and Save a Life.

It's Jodi again.  I tried to get the blog up while we were in Cincy, but it just didn't happen.  So...here I am a little late again. 

Last week was a good one in Cincy.  Jacob did awesome with his port access and was a pleasant travel companion.  Dr. Filipovich dropped his prednisone (steriod) down from 3ml to 2ml daily.  I think we'll be at this dose for awhile now.  The next step would be to move it to 2ml every other day, but I think we're going to try first to cut back the photopherisis treatments from three times a week to two times a week.  Last time they cut back the steriod and the photo treatments at the same time it didn't work.  We sort of asked if we could try to cut the photo treatments back just due to the logistics of needing a babysitter for Justice for 4 days now that Brian will be going back to work in a couple of weeks.  Cutting  the phot ...

Hi it's Jodi again with a really late blog entry.  If I don't get the blog updated while we're in Cincy, it's almost impossible to do once we get home.  Sorry. 

Anyway...good news is that Dr. Filipovich decreased Jacobs oral steriods.  He's now on 3ml of prednisone daily and also receives a large IV dose once a week.  The rest of his labs looked good.  It turns out that the immune study labs they drew last week won't be accurate due to the time they drew them (following a certain infusion it falsely elivates things).  So they redrew the blood and we hope to have some info next week and more info the following week.  I asked Dr. F if there was any hope that Jacob's immune studies would come back with numbers they'd be comfortable sending him to preschool with and she smiled and said, "there's always hope."  We'll see.

We had an eventful week in Cincy...our regular ...