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Location: Blogs The cure4treebeard Blog |
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| Posted by: Daddy |
2/19/2007 9:55 PM |
“Mommy, we’re going to go out West someday.” These are the words Jacob is hollering in to me in the kitchen from the living room. He’s watching the Ballad of Little Joe – a Veggie Tales video set in the Wild West. This boy is so ready to see the world.
We had another good day here in Cincinnati. We ventured outside a couple different times and JT had a bit more stamina, which is to say we were out for ten minutes each time, not five. Again, baby steps. He got a big kick out of cracking the icicles down off the shrubs with a big stick.
On the calorie front he did well today. We did have one vomiting episode though right after his last evening oral med. It just kills me to hold the pail for him as he heaves. His eyes have such fear and confusion in them. My own eyes well up with tears and I wish so much I could take it all away. He rebounds quickly though. After sitting quietly for about five minutes he jumped up and said, “Mommy, I want to go grocery shopping again.” I set the plastic play fruits and chicken legs and ice cream cones up all around the living room on various tables and shelves. Then he gathers them up in his little grocery basket and with great excitement brings them to the cashier to pay. The currency we use around our house is Dora the Explorer dominos. Although it’s the same food order each time, the total always varies from two Dora dominos to five Swipers to twelve Backpacks. It’s a lot of fun and soon we both forget all about the yucky throwing up.
Thank you all for your continued prayers. Jacob’s el humungo prayer tree on our living room wall is such an encouragement. We are blessed beyond measure with such an incredible support system. It really does make a huge difference. |
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Raise money for the National Foundation for Ectodermal Dysplasias simply by clicking your mouse! GoodSearch.com (powered by yahoo.com) is donating money to charities for use of their search engine. To use it, install the GoodSearch toolbar to the top of your browser screen and then type in the charity (National Foundation for Ectodermal Dysplasias) and then search as you would on Google.com or Yahoo.com. The NFED gets a monetary donation for every search! The more folks that know about this, the greater the donation to NFED, and hence the more money there is to fund research on Jacob's condition and others like his. Thank you!
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