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“He is like a tree, planted by streams of water, which yields its fruit in season, and whose leaf does not wither.” --Psalms 1:3

Location: BlogsThe cure4treebeard Blog    
Posted by: Daddy 2/23/2007 9:18 PM

 

We had a great visit at the day hospital today.  We got there at 8:00am and were home by 12:45pm.  Uneventful trips are what we like.  The most commotion of the day happened when our Child Life Specialist, Amy, showed up and asked Jacob what she could bring him to play with.  The boy almost burst a blood vessel shouting out, “some playdoh, a pirate ship, some dragons, a cave and everything.” 

 

Jacob’s labs looked pretty good again. He weighed 15.7, but it was first thing in the morning so no one was concerned about the drop.  Dr. Davies was the BMT doc that checked Jacob out at the hospital today.  We hadn’t seen her since Jacob was inpatient BMT. She was really thrilled with how good Jacob looks and how well he is doing.  I think I take it for granted that he is doing so well.  I don’t want to do that.  Today I ran over to the parent lounge on the BMT inpatient unit and saw two different family members of children who were transplanted the same time as Jacob.   My heart was heavy for them knowing their kids were still inpatient and that things were not going as smoothly for them.  It was sobering.  I went back to Jacob’s outpatient day hospital room counting our many blessings.

 

Please remember these other children in your prayers and all the little ones on the BMT floor.  Thank you for your continued prayers for Jacob too.  We are so grateful for God’s good mercies upon us.

 

I also ask for your prayers for Brian and Justice, both of whom are sick.  Justice has a cold and Brian has a terrible sore throat.  Thank you.

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Raise money for the National Foundation for Ectodermal Dysplasias simply by clicking your mouseGoodSearch.com (powered by yahoo.com) is donating money to charities for use of their search engine.  To use it, install the GoodSearch toolbar to the top of your browser screen and then type in the charity (National Foundation for Ectodermal Dysplasias) and then search as you would on Google.com or Yahoo.com.  The NFED gets a monetary donation for every search!  The more folks that know about this, the greater the donation to NFED, and hence the more money there is to fund research on Jacob's condition and others like his.  Thank you!

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