Jacob continues with 6-8 episodes each of vomiting and diarrhea. The doctors are unsure if this is being caused by the rotavirus or the feeds or a combination of them both. Despite these things the team wanted to discharge us today, but it ended up we had to stay in order to see Dr. Lucky, Jacob’s dermatologist. She has been following Jacob throughout all his skin issues. It takes months to get an appointment with her, so I was grateful that she would make room in her busy schedule to come see us with only a days notice. Jacob developed two little red spots on his lower belly that I was concerned looked a little like how that rare fungal infection first presented. She wasn’t concerned about those marks, but found a different little bump on his thigh that she felt we should watch closely and biopsy if we notice significant change in it. Please pray that these spots just go away on their own and are nothing.
We had a really restless night last night with Jacob moaning and calling out for me. He just wakes up screaming sometimes. He feels really crappy, but tonight we gave him some IV benedryl so he is sleeping peacefully as I write this.
Jacob’s calcium level remains elevated and his red blood cell count is on the very low end of acceptable. He is making red blood cells so they are trying to hold off giving him a transfusion. The tentative plan is for us to go home tomorrow, but I’m not quite sure that’s going to happen. We certainly don’t want to repeat what happened last time after discharge, so we’ll see what the team decides to do. Tomorrow engraftment results should be back. I’ll keep you all posted.
Thank you all for keeping up with us. Please pray that Jacob will start feeling better soon. God’s peace.