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Location: Blogs The cure4treebeard Blog |
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| Posted by: Daddy |
4/27/2007 8:57 PM |
Happy birthday Justice! We had a great day, shared some really great moments together. JT’s hemoglobin count was about the same and his other test was inconclusive. But we got the green light and JT left Cincinnati for the first time since October. Jodi made a cinnamon loaf for breakfast and a homemade dinner and then packed us boys into the car this afternoon and we headed south. We made it and were able to get right down next to the balloons while avoiding most of the people. Pray for protection as a hotel room seems particularly germ-laden. But the boys were thrilled tonight, and it seems like the sort of risk that was right to take. JT was hooked up to his Cyclosporine pump as the balloons lit up and he’s in the other bed getting his feeds now. Justy is in a pack-n-play exhausted after an enthusiastic day of celebrating two years of Justice. It was a day to remember…more balloons tomorrow morning and then I head back north to Youngstown with Justice. This time together has been a sweet, sweet glimpse of the sort of life we hope for soon. |
| Copyright ©2007 Brian Brown |
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Raise money for the National Foundation for Ectodermal Dysplasias simply by clicking your mouse! GoodSearch.com (powered by yahoo.com) is donating money to charities for use of their search engine. To use it, install the GoodSearch toolbar to the top of your browser screen and then type in the charity (National Foundation for Ectodermal Dysplasias) and then search as you would on Google.com or Yahoo.com. The NFED gets a monetary donation for every search! The more folks that know about this, the greater the donation to NFED, and hence the more money there is to fund research on Jacob's condition and others like his. Thank you!
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