Man, nothing is easy for this kid.  The D is the same – worse some days in fact, and he had a violent episode of the V at the hospital today as well.  Dr. Filipovich told Jodi she “isn’t concerned” but at the same time she’s ordered IVIG to be given straight into his feeding tube starting tomorrow; that tells me her level of concern is not zero.  So we have to take JT into the hospital for the next 10 business days in a row, sit in the Clinic, wait.  We’re ready to try anything that might help, but I hate to take him into that germ cesspool – we know that’s where he caught this accursed bug in the first place.   But what are you going to do?

Dr. Filipovich is, however, concerned about the sores on his face.  All are much bigger – two have now turned black.  Dermatology docs will pay a visit on Friday during our appointment to see what they think:  usually they just take pictures and say they’ve never seen anything like it before.  We’re putting antibiotic ointment on three times a day but they’re getting worse instead of better.  We need answers, and no one seems to have any. 

His electrolytes remain low so he’s on nightly IV fluids for the foreseeable future.  Meanwhile, his calcium is trending upwards again, a bad sign all around.

Even as I type he’s upstairs with Jodi retching into one of those pink plastic vomit-catchers they give you at the hospital.  It’s an ugly sound and I’m sick of it.

Overall we’re grateful but tonight I’m mostly angry.  Enough is enough, eh?  Jodi is heading north tomorrow with Justy to make decisions about readying the new house in GC (and our hopes are so strong that we’ll be there together soon) but tonight it seems like our boy is a long, long way from there.

So please pray.  Almost six months out, you’d think we’d be sailing right along but the seas look rough as far as we can see.