Seems like the doctors are shifting into a higher gear. They’re getting serious about sending us home which is exciting and a little scary at the same time. Lots of changes – they discontinued the IV fluids that he’s been getting overnight for forever. They also changed his IVIG infusions from weekly to every other week. Finally, they’re also going to start tapering his Cyclosporine over the next 8-9 weeks.
So we’re moving forward but it isn’t all rosy news. They drew labs for immune function last visit and his T-cell and B-cells are extremely, extremely low. This means that he’s particularly susceptible to viral infections and problems caused by airborne leaf mold. So we’re back to basic lockdown in terms of people and windy days. We also need to be more conservative with Justy since he’ll be around JT; Dr. Filipovich said, “Now is not the time for socializing or socialization. You don’t want him to wind up in the hospital for six weeks.” No doubt.
He got an anti-D med prescribed today so hopefully that will help. He had some bad V once we got back from the hospital which caught me by surprise.
As we taper the Cyclosporine, his T-cells and B-cells ought to become more numerous. However, the Cyclosporine is what’s been protecting him from Graft-vs.-Host-Disease. This whole BMT process is a balancing act. Please pray earnestly that his immune system grows strong and that he remains healthy and completely free of GVHD over the next few months. This is another critical time.