Jodi’s MRI looked completely clear:  thank You God and thank those of you who prayed for her.

JT’s feeds are running around the clock now and he’s tolerating them better – not backing up so much and he’s definitely got more energy now that he’s getting more calories.  He’s got this really cool backpack that he wears around to hold the pump and the feeding bags.  He looks great, like a little mountain-climber.  He’s into it.  He told me he’s a “superhero dinosaur Treebeard backpack explorer.”  He’s so much more mobile with the backpack, always free from the pole now – I wish now I’d started using it 6 months ago.  24-hour feeds with the backpack are the way to go, no doubt. 

The D is slowing down in terms of frequency but when it comes, it comes in volume.  Right before Jodi and Justy arrived he woke up from his nap screaming and when I got there it was a poop-fest:  clothes, bedding, JT all awash in it.  He was crying and upset and I was stressed too – not an ideal situation for an immune-compromised kid.   But we got it cleaned up just in time for a joyful reunion…it’s so good to be together.

Please pray earnestly for the D to subside.  JT and I met with the GI docs yesterday and they’re the ones who recommended 24-hour feeds.  They also suggested moving to an even more basic feeding formula which we’re going to do by Tuesday if we don’t see improvement.  The thing is, they want to see improvement within two weeks…if it’s the same, they’re talking about another scope – not something I want to put him through again if it can at all be avoided.  They also sent out a host of blood tests to check for other infections or diseases that could be causing these sorts of problems.

I sympathize with the doctors:  they are problem-solvers and they want to fix things.  I like being proactive myself, so I understand.  But when I push them, they admit that the simplest explanation continues to be that his gut is still reeling and healing from the rotavirus.  I’ve always been taught that the simplest explanation is the most likely (Occam’s Razor is a principle I live by) so I don’t want to push for answers so hard that we put him through invasive procedures unnecessarily.  In any case, please pray for improvement and soon.  Thanks.