JT’s NG tube has been showing signs of wear – we give so much medicine through it that the ports become stretched out: eventually the feeding line won’t stay attached. This means, for instance, that he’ll wake up hollering in the middle of a nap or the middle of the night with his clothes and bedding soaked with feeds that were pumped into his bed instead of into his stomach. Bad all the way around.
So we had to call the home health nurse this morning to come replace it. Not fun at all. She pulled out the old one and JT ran and hid behind our biggest chair and cried and wouldn’t come out to have the new one inserted. I told him to please come out so he could get a new feeding tube and through his sobs he said, “No thank you. It makes me uncomfortable.” Finally he came out but then I had to hold him down while she fished the new tube up through his nose and down his throat into his stomach while he screamed and coughed. I hate it.
But he’s got a new one now and the feeds are running. One thing about it – he bounces back fast…he was up and running around and happy again less than five minutes after the procedure was over.
No word today from Cincy regarding the two biopsies. Please pray that we receive encouraging news tomorrow. I think it looks a little better, like the lesion is closing in on itself. We really need for this to be nothing serious.
We finally have running water at the house again. Let me tell you, that’s not something you want to do without for very long, especially with two little boys running around.
Tomorrow is my first official day of teacher in-service for the ’07-’08 school year. So the “sabbatical” is officially finished. I believe the word has the same root as “Sabbath” with its connotations of restfulness, which I presently find somewhat ironic.
Anyway, we’re awaiting the dermatopathologists’ report and praying that it’s a good one and we’re bumping up his feeds while he receives about ½ as much TPN overnight. Please pray that all of these changes are graceful ones. Thanks!