Jodi bumped the feeds up to 60 ml/hr today at naptime and so far, so good. This is great news for his calorie and fluid intake both. He’s also bellying right up to all kinds of food…he spits it all out after tasting it or chewing for a few moments but it’s progress and we’ll take it. I guess he and Justy had a wonderful time running through the sprinkler in the yard this afternoon – it was a hot one here.  He’s so happy to finally be able to play in water, even if it’s just a little bit. 

As Jodi related last night, his rash is truly awful. The sores haven’t opened up into open boils like they have in the past so we’re grateful for that. Still, we’re wearing socks over his hands at night and praying for relief soon. Please join us, and thank you.