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Location: Blogs The cure4treebeard Blog |
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| Posted by: Daddy |
9/26/2007 7:02 PM |
Last night JT’s bandage came unstuck and revealed the incision the surgeon made when inserting the new port. That was the first I’d seen it and it’s significant, a reminder that this is still serious business.
Things are about the same medically: feeds running at 60 ml/hr 24 hours a day without any V (thank God), rash looking bad, spirits high. Jodi took the boys to Kraynaks and Lowe’s today and they had a blast checking out all of the early Christmas decorations. JT gets particularly stoked for Christmas and that’s appropriate, especially since his transplant was on St. Nicholas’ Day.
A kindly woman recognized JT at Lowe’s and told Jodi that she prays for him every day. Jodi had never met her before…it was a moment that reflects a profound truth about this year: we’ve been carried in prayer by people we don’t even know. It’s encouraging and humbling and wonderful. Please keep it up. |
| Copyright ©2007 Brian Brown |
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Raise money for the National Foundation for Ectodermal Dysplasias simply by clicking your mouse! GoodSearch.com (powered by yahoo.com) is donating money to charities for use of their search engine. To use it, install the GoodSearch toolbar to the top of your browser screen and then type in the charity (National Foundation for Ectodermal Dysplasias) and then search as you would on Google.com or Yahoo.com. The NFED gets a monetary donation for every search! The more folks that know about this, the greater the donation to NFED, and hence the more money there is to fund research on Jacob's condition and others like his. Thank you!
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