Last night JT’s bandage came unstuck and revealed the incision the surgeon made when inserting the new port. That was the first I’d seen it and it’s significant, a reminder that this is still serious business.
Things are about the same medically: feeds running at 60 ml/hr 24 hours a day without any V (thank God), rash looking bad, spirits high. Jodi took the boys to Kraynaks and Lowe’s today and they had a blast checking out all of the early Christmas decorations. JT gets particularly stoked for Christmas and that’s appropriate, especially since his transplant was on St. Nicholas’ Day.
A kindly woman recognized JT at Lowe’s and told Jodi that she prays for him every day. Jodi had never met her before…it was a moment that reflects a profound truth about this year: we’ve been carried in prayer by people we don’t even know. It’s encouraging and humbling and wonderful. Please keep it up.