Tomorrow is a big day: at 1:30 Jodi is joining the other NEMO families and Dr. Orange for a “Webinar.” It’s all too complex for a computer-peasant like me to comprehend but from what I gather it’s going to be a sort of virtual roundtable discussion in which parents may address each other and have the opportunity to ask Dr. Orange questions directly. He’s the guy who is operating an entire lab dedicated to learning about this disease. There aren’t too many of us: some of our children have been through transplant and some are in the middle of it and some are waiting. We hope the meeting proves productive and insightful and encouraging for all of us.

JT’s feeds continue to roll at 60 ml/hr. Seventy would be perfect so we may bump him a little more tomorrow. The rash looks about the same. Grandpa Brown was here this afternoon hanging out and hooking up a new swing for the swingset. The boys were glad to see him and can’t wait to do some swingin’ tomorrow. That’s about it for tonight - thanks for checking in.