Life is good here but for this accursed rash. It seems to be browning down some on his arms, legs, and torso, but his face looks worse than ever and his hands are starting to crack and bleed. Not good. Once again, we earnestly hope that when Jodi talks to Cincinnati tomorrow, they’ll have some new ideas about the IVIG based on Dr. Kress’s hypotheses. I know JT needs the IVIG, but I can’t see giving the same thing to him yet again and causing a third outbreak before the first two are anywhere near healed.
In the midst of the rash troubles the feeding thing has taken a back seat. Jodi is also going to be in touch tomorrow with the Children’s Institute about weekly speech therapy with a view towards getting him to swallow again.
Hard to believe that it’s a Cincinnati week but it surely is. Please start praying even now for the doctors to have wisdom and answers for our boy. Thanks.