We were at camp and then without Internet last night – sorry for the blog lapse. The good news is that everything is fairly stable. Jodi is 100% better, Justy’s cold never blossomed into anything larger, and JT’s skin is on the mend. It still looks awful, but we can see the pink new skin under all of the calluses which is very promising.

JT is doing great with potty training. Jodi said that he’s had some of the D twice today so that’s definitely cause for concern and a prayer request. He hasn’t had IVIG in 4 weeks which makes him more susceptible to illness than he’s ever been since transplant and though we were very cautious, Jodi did have some D herself last week. Please pray earnestly that there’s no more of this tomorrow.

They decided to postpone yet another week on the IVIG. Our feelings are very mixed: on the one hand we absolutely don’t want to give him another skin flare-up, especially now that the worst skin he’s ever had is starting to show good signs of mending. On the other hand, we know that he needs the protection that IVIG alone can provide especially as we move into cold/flu season. 

So here’s the tentative plan: a home health nurse comes tomorrow to draw IGg levels. We’re hoping that they’re at an acceptable level and one that will enable him to get subcutaneous IG at the hospital in Cincy next week.

On the eating front, he’s making slow progress. He’s currently getting a PediaSure/water mixture once a day in a bowl, and his homework from The Children’s Institute is to “eat” 10-15 “bites” of this mixture with a spoon once a day. So far, so good, but there’s obviously a very long way to go with this.

Thank you for keeping up with our story and for praying for our son.