Just talked to Jodi – she and JT are on target to arrive here b/w 1:30 and 2:00 a.m. Long day. 

JT’s blood counts look good but they weren’t able to get enough blood to do all of the tests they need. The subcutaneous infusion went well as far as I can tell. He has football-shaped swellings at the two sites where the needles administered the drug – we understand that these can become angry and irritated so we’ll be watching them closely. The main thing we’re praying for is his skin, that there’s no reaction at all, that the healing which has just started has a chance to run its course.

Jodi said they were absolutely appalled at his skin and she had to keep telling them that this is actually a major improvement from where he’s been.

If all goes well, we’ll be giving subcutaneous IG here at home once a week through December; then they will return to Cincinnati in January for a full-scale workup of JT’s entire immune system function to see what’s what at the one-year mark. After that, we hope to scale back on our visits there considerably.

Thanks for checking in – please pray for his skin…