Jodi and JT spent last night at the Cincinnati Hannaford Suites and today at Cincinnati Children’s Hospital. His infusions went well and the meds are doing what they’re supposed to be doing – taking out whole sections of his immune system.
The good news is that both the CAT scan and the biopsies from last week look good, no problems. We’ll take it.
We thought we’d be on track for the light therapy treatment to begin this month but the hospital is on institutional time, which means “Hurry up and wait.” Not easy for someone like me who is constitutionally impatient.
The doctors told Jodi today that the areas of JT’s skin which have become pigmented and very hard will probably never soften, will be that way permanently. This was not my understanding of the situation; I thought there would be some healing, I thought that was the whole point of the light therapy. But Dr. Marsh told Jodi today that his skin will never be normal. Reason # 897 to look forward to the Kingdom.
That’s pretty much it. Jodi and JT will likely not get out of the hospital until between 7:00 and 8:00 which means a late-night arrival in Canton where they’ll rendezvous with Justy and spend the night before coming home. Please pray for our family, and especially for Jacob Treebeard. Thanks