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“He is like a tree, planted by streams of water, which yields its fruit in season, and whose leaf does not wither.” --Psalms 1:3

Location: BlogsThe cure4treebeard Blog    
Posted by: Daddy 5/8/2008 6:33 PM

Sorry I'm not posting until now. 

We really didn't get any new information at our visit on Wednesday.  JT's infusions went well.  Dr. Filipovich came in and thought his skin looked markedly better than two weeks ago when she last saw him.  She also offered her sincere apologies for the miscommunication/s surrounding the photopherisis therapy.  She promised to get to the bottom of it all by next week and have a solid time frame of when we can expect to begin.

Thank you all for your continued support. 
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Raise money for the National Foundation for Ectodermal Dysplasias simply by clicking your mouse!  GoodSearch.com (powered by yahoo.com) is donating money to charities for use of their search engine.  To use it, install the GoodSearch toolbar to the top of your browser screen and then type in the charity (National Foundation for Ectodermal Dysplasias) and then search as you would on Google.com or Yahoo.com.  The NFED gets a monetary donation for every search!  The more folks that know about this, the greater the donation to NFED, and hence the more money there is to fund research on Jacob's condition and others like his.  Thank you!
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