Jodi here.  Sorry for the delay in my weekly posting.  It was a non-stop week in Cincy last week and then when JT and I got home for the weekend the time just flew.  Brian and JT left for Cincy this morning.

Last week went very smoothly.  JT continues to be so brave and strong when getting his port accessed.  The biggest news in this arena is that we are going to move JT's normal infusions to the same day as one of his photopheresis treatment days.  This means only three needle sticks a week instead of four.  It will make for a very long day with photo treatments and then 3 hours of his regular infusions, but it's worth it.  His chest around his port is tender and bruised from so much use.  One less needle stick a week is helpful.  And better yet, when the photopheresis treatments decrease to only twice a week, this will mean only two needle sticks and only two full days in Cincy.  Yeah!!

We certainly don't mind the trips and are extremely grateful for this type of cutting edge therapy that Jacob is receiving, but it will be AWESOME to be home in Grove City more days a week then in Cincy.  Family rhythms have been a bit more of a challenge with the frequent trips, but we've been able to have some really enjoyable family time on the weekends.   All in all things are going well.  We'll have to see what Dr. Filipovich says this week about decreasing the photopheresis treatments possibly.  Look for a post from Brian in the next few days.  Thank you for checking in on us and your continued prayers.