For the first time in several days JT woke me up by saying, "Good morning mommy."  He had gotten unhooked from the IV pole for the first time since he arrived and had come to sleep next to me on the pull out couch.  He hopped out of bed and acted a little crazy and was seeming his old self.  But a half hour later he started really complaining that his throat hurt him.  I gave him some tylenol and benedryl and he's a little more comfortable now.  He still has coughing fits about every half hour, which can't help his throat.

We just finished rounds with the team and the plan at this point is for a Sunday discharge.  Clinically Jacob's doing better, but his white blood count dropped to 1.0 this morning.  They are going to give him a drug to help stimulate his WBC count today.  His blood cultures remain negative so that is good.  He's tolerating his feeds as well.  Brian is coming tonight to relieve me and I'm going to stay in our home away from home (Hannaford Suites) for the weekend and try to get better.  They are working on lining up JT's photopheresis for Monday, Tuesday, Wednesday next week and we'll just stay in Cincy until then and avoid an extra trip in the car. 

Justy will stay with my dad and Charlene this weekend.  What we do next week will depend on whether we are still going to keep the boys in preschool or not.  Brian and I are really, really bummed about this.  We haven't had a chance to thoroughly discuss the issue yet, but one thing is true - we didn't have these viral issues before preschool.  This is no way for our family to live.  JT is really starting to dislike hospital living and i don't blame him.  I don't care for it either.  And then there's Justy.  Of course he's in great hands with our parents, but I miss him terribly.  We are so blessed that he is so easy going and happy to be wherever he is.  And then there's Brian and me.  Well, we haven't had a real conversation that didn't include medical terminology and who's watching Justy and how's he getting there in weeks.  This crazy schedule is not so great for our marriage either.  I miss my husband, I miss my family being together, I miss being in the comforts of my own home.  Can you tell I don't feel very well?  Sorry for the complaining.  I've just been feeling a little down about all of it and know that we all need to just press through it. Paul's words that I've learned the secret  of being content in any situation, whether in plenty or in want are fresh in my mind today. 

Please continue to pray for us.  We're grateful.