Brian here in Cincinnati. Here's the scoop:
JT is a whole lot better than when I left here last Monday. He's breathing okay and he's been fever-free for 48 hours so the doctor discontinued antibiotics this morning. The allergic reaction he experienced yesterday (presumably from the IVIG infusion) has abated. His white blood cell count jumped way up after the GCF infusion. He's tolerating his feeds well but still experiencing D when he sits down on the toilet. The next time he goes they want a culture. His coughing fits are troubling and they're violent when he's in the midst of one. The doctor told me today that the cough would linger after the other symptoms have subsided.
Jodi has been feeling terrible. She headed off to the Hannaford Suites last night after I arrived and I hoped that she would feel much better after a night's rest. She didn't. So she hit a Cincy Urgent Care center this afternoon to make sure that her throat pain wasn't strep - it's not. What's currently making her so miserable is the same thing JT has been fighting. It's a nasty virus and I'm washing my hands like crazy trying to dodge the bullet.
The current plan is for me to rent a car tomorrow and head back towards home. JT will get blood tomorrow to ready him for photopheresis Monday. After Monday's treatment he'll hopefully be released to spend the night at the Hannaford Suites. Of course it will be back to the hospital Tuesday and Wednesday but, God willing, they should be free to head for home Wednesday night. Please pray that this all works out, that Jodi and JT feel stronger every day, and that we don't have to do this routine again anytime soon. Thank you.