Well...we survived!  There were definitely a few bumps, but overall a good trip.  The first hiccup was that the childlife center (playroom) was closed both days we were at the hospital for special cleaning.  In all the time we've been at the hospital we never knew they did that.  Jacob and I had been telling Justy all about how much fun it is and how they bring you toys to the room and then when you're done playing with those they bring you more.  Thankfully our wonderful childlife specialist, Amy, had pulled a few toys aside for us and we managed just fine.

Second hiccup was that at 7:00pm on our first day at the hospital Jacob accidentally pulled his line out.  Now in the back of my mind I thought that perhaps this might happen, I just thought that it would be Justy that did it.  Jacob was getting his second infusion when it happened and it wasn't quite finished yet so they had to re-access his port but without the use of numbing cream.  He did great.  Finally at 9:00pm we were pulling out of the hospital parking garage and heading to the hotel.

The boys had a blast at the hotel room.  They had lots of energy to burn and the two queen size beds side by side with about three feet separating them provided all the fun they needed.  They jumped, dove and pushed each other back and forth non-stop until Jacob bonked off and mommy finally called it quits.  He was fine and we all got a big chuckle at how his bum sounded when it hit the floor. 

We finally got to bed around 10:30pm.  It was a fitful night of rest as we all started out on one bed, then Jacob moved, then he woke up and wanted me to sleep with him, so I moved.  Then Justy fell out of bed and I had to move back to comfort him.  I'm not even sure who I was sleeping with when the alarm went off at 6:00 am. 

We were back at the hospital by 7:30am.  Jacob's photo therapy and last infusion went well.  There is some concern that the skin on his arms is tightening back up a little since we cut the photopheresis back to two times a week instead of three.  Dr. Filipovich said we'd keep a close eye on it next week and determine what to do.  It will be a lot harder going back to three days now that we've tasted two days.  We'll see.

We were back on the road heading home by 2:00pm.  Both boys passed out before we even left the parking garage and slept for almost 2 hours.  They were wiped out.  I enjoyed the reprieve.  We made a few stops on the way home - one to see the Christmas blow-ups at Lowe's.  The boys just go crazy over these blow-ups.  It's cute.  We made it home around 9:30pm.  Overall it was a good trip and I'd take Justy again if I needed to, but both boys told me when they got home that they didn't want to go to the hospital or anywhere ever again.  I think they like coming home.  Me too!  Thanks for checking in.