Hi Everyone.  Too much time has passed since our last blog entry - sorry about that!  I was just reading what the last update I posted said and feeling very thankful for where we are today.  For starters, today marks the 2nd year anniversary of Jacob's transplant.  To be completely honest, we were hoping to be in a little different place than we are, but having said that, we're thrilled that Jacob is thriving and still fighting the good, brave fight!  We are so grateful to our donor who so selflessly sacrificed to give our child life.  I'm also so happy to share that this was the first week since May that we did NOT have to travel to Cincinnati.  I didn't really want to write it until it actually happened and it did!  Jacob's skin continues to soften and Dr. Filipovich felt it was ok to move to Photopheresis treatments 2 days a week, every other week.  What a wonderful change this is for our entire family on so many levels.  Jacob will still need to receive three infusions every week, but we are able to get them done locally.  This week we got them administered at our local hospital in Grove City.  They were wonderful to us, but from an exposure standpoint we're hoping the possibility of having them done by a home health nurse in our home will work out.  We'll see.

Thank you to all of you who continue to fight the good fight with us.  We are blessed.