JT and I have traveled through snow, sleet, wind, and pouring down rain on our treks to Cincinnati. We had never cancelled an appointment at the hospital due to weather conditions, that is, until two weeks ago. I was all packed and ready to head out when Brian called and asked if I had checked the weather report . I said "no", I never do. As far as I'm concerned my job is to get my son to Cincinnati every two weeks for treatments. Then Brian said, "have you thought about cancelling?" I had never considered this. It tooks just a few moments for the weather channel to pull up and Brian's words to sink in. Within seconds I was on the phone with JT's nurse practitioner. She was very supportive and thought that JT would be ok waiting a week for treatment.
Soooo the following week JT and headed out to Cincy. We made it there just fine, but the next day by the time we were finished at the hospital and ready to head back to the hotel a blizzard had hit Cincinnati. It was crazy. It took me three tries to make it up the small hill into the hotel parking lot and then the help of the maintenance man to help push us into our parking spot. Needless to say I was a little nervous about our impending drive home the next day. Amazingly by the time we were ready to head home the roads had cleared quite a bit and we had no troubles.
JT's appointments went well. He ended up needing a blood transfusion the first day and then flew through photo treatments. The next day his line was sluggish even with the use of TPA, but he got the full three rounds of treatment. There was talk again of the new machine and hopefully having it ready to go sometime during March - we'll wait and see. It seems as though we will doing these treatments for quite awhile still and sure wish that some place in Pittsburgh would decide to perform this therapy on children. Until then we'll keep trekking to Cincinnati. JT and I make the best of it and his new found love affair with LEGOS has sure helped to pass the time in the hospital.
On the homefront poor Justy has been sick with a cold/cough thing for several weeks now and hasn't been able to shake it. Our pediatrician started him on breathing treatments just today so we'll hope this does the trick. He's still a jolly kid through it all. Today on the way to the doctors he told me he just wished that colds didn't exist.
This weekend Grove City College is holding a Relay for Life event that we plan to take the boys to and then the next night our church is holding a talent show and benefit dinner. JT is signed up to perform a dramatic interpretation on Psalm 46. This is the psalm that we have prayed over him ever since transplant. He knows it by heart and truly is quite the little actor when he recites it. The neat thing is that the benefit dinner is to raise money for a six year little girl in our area that is currently going through a bone marrow transplant in Pittsburgh. JT is so excited to share "his" psalm to encourage Anna.
We are so grateful for where we are on the transplant journey. Thank you for all your love and support along the way!