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Location: Blogs The cure4treebeard Blog |
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| Posted by: Daddy |
6/5/2011 12:17 PM |
May 2011
Summer has finally arrived! Here in western PA, we had a regular monsoon season instead of a spring. I’ve never seen it so wet for so long. We’ve finally seen the sun during the last week and that’s been a welcome reprieve.
May was good to us. Jodi ran her marathon on May 7. She was awesome. The course was beautiful, following the Susquehanna River for long miles, veering off-road for a stretch, and crossing both a railroad trestle and an antique covered bridge. I greeted her with signs and encouragement at a couple points along the route, and we even ran together for two miles during the 2nd half. Whereas I was nearly incapacitated after I ran my marathon several years ago, Jodi crossed the finish line smiling gracefully, touched her toes a couple of times, and announced that she was ready to grab a quick shower and go shopping at the local festival. Very impressive. And to top it all off, she was awarded a trophy – 3rd place finisher for her age group. We’re all proud of her.
My parents invited us to Hilton Head over Memorial Day so that’s about all the boys talked about for the last month. Justice belted himself into his carseat a full half-hour before we were ready to leave and just sat there in our van, anticipating. Once we got there, JT and Justy had an absolute blast dividing their time between swimming in the pool, wave-jumping in the ocean, and playing “Angry Birds” on Uncle Steve’s iPad. Thanks to Grandma and Grandpa Brown for the great memories.
Only one more week of school! It’s hard to believe that next year we’ll have a first-grader and a second-grader. Both boys switch schools, so it will be a transition. We are so thankful for the positive experience they’ve had. They love school and, I think, will be a little sad to see it go. They’re already practicing for the summer swim team, and we’ve renewed our membership at the pool at the end of the road, so I think they’ll spend much of their summer months in the water. The pool is a huge blessing for us – since JT doesn’t sweat, it’s about the only way he can be outside June-August. I will be either taking or teaching classes for much of the summer, so Jodi, with two wildmen on her hands, is especially grateful to have the pool to fill the long afternoon hours.
Thank you for your continual prayers. During JT’s last visit to Cincy, his ANC looked solid for the first time in a long while. The doctors said his skin looked good, and the graft-vs.-host-disease blood markers were also encouraging. So, Dr. Filipovich continued weaning down the steroids. Please pray for his skin over the summer. We have a full-body swimsuit for him, and we try to be vigilant about applying sunscreen, but the sun can trigger another flare-up of GVHD and at this point, that would be really, really bad. Also, his enthusiasm for food has not blossomed like we hoped it might. He continues to pick at his food, take a few occasional bites, and ask to be excused. We keep hoping that someday he’ll show some sustained interest.
Thank you for checking in on us every month. We continue in a season blessedly free of medical crises, and for that we are very, very thankful. We hope that all is well with you, our family and friends, as well.
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