JT and I are still in the hospital in Cincy, but basically we're just hanging out until so he can get his regularly scheduled photopheresis treatments on Monday and Tuesday mornings.  JT's blood culture remains negative, his CBC is normal and he's clinically still feeling great.  He is still receiving two IV antibiotics, just to be on the safe side. 

This trip has been a little confusing to me.  I got the call to hurry up and get JT to Cincy and then when we got here they just started antibiotics.  I wondered why we couldn't have just done that in Grove City.  Anyway, after talking with the docs and nurses yesterday I understood better the reasons behind the trip.  The docs are assuming that these spots are the same as the ones he had before.  Now these may end up being a normal part of JT's way he handles a cut, but the docs aren't sure at all about that yet.  Last time when he got the necrotizing fasciatis they weren't sure why and they had to be sure it wasn't going to happen again.  The bottom line is they don't know what this is, but they want to be very careful with it until they have more history with what these spots are going to do.  It's sort of the same as we went through when JT got a fever.  At first we had to life flight him to Cincy, then we moved to being able to stay in the GC hospital to now we're able to give tylenol and wait a little to see if  we have to go to hospital at all.

I think as the docs here in Cincy get a better feel for what these spots are and are not going to do we won’t have to make these trips to Cincy on the drop of a dime.  Frankly, we’ll all be happy when we get to that point because now JT and I are basically stuck in the hospital for the weekend waiting for photo on Monday.  Thankfully JT feels fine and we’re able to play and have fun.  Although, he did just have a little melt down when I tried to give him a sponge bath.  He just started crying and saying he couldn’t do it and as he digressed he started saying he just can’t take all the people coming in a taking his vitals and checking his skin and bothering him so much.  I really can’t imagine what it’s like for him.  It must be extremely frustrating.  Please pray that the weekend goes quickly and we’re able to possibly get out on Monday afternoon so JT can run around and be a kid.